Working Toward Meaningful Engagement

PEPR aims to generate new insights on meaningful engagement that better reflect the needs and knowledges of people with lived experience of chronic pain and marginalization through principles of equity, diversity, and inclusion.

Partnership History

Fiona Webster (Professor, Western University Nursing; Director) was awarded a $2.4M Partnership grant from the Social Sciences and Humanities Research Council, plus over $800k in additional partnered funding, 2022–2027.

The project, “Toward democratization of health: A sociological exploration of patient engagement in pain research,” will be known by the acronym PEPR (Partnership for the Engagement of People in Pain Research).

PEPR is based at Western University in Ontario.

The Canada-wide partnership includes people with lived experience of chronic pain, eleven co-investigators, several collaborators, project staff, and postdoctoral fellows representing the University of Toronto, McGill University, the University of Victoria, the University of Calgary, York University, the University of Montreal, McMaster University, and the University of Quebec Abitibi-Témiscamingue.

Click on the photos below to learn about each team member.

Note: some of our team members are also people with lived experience. We have noted those people with asterisks (*).

Leadership Team

Prof. Fiona Webster

Director and Principal Investigator

Dr. Kathleen Rice

Co-Director - Academic

Desmond Williams*

Co-Director - Person With Lived Experience

Dr. Laura Connoy

Research Manager and Postdoctoral Associate

Jaklyn Andrews

Knowledge Mobilization Specialist

Claire Mavis*

Trainee

Emerald Asuncion*

Knowledge Mobilization and Lived Expertise Engagement Strategist

Karime Mescouto

Postdoctoral Associate

Community Consultations Advisory Committee

Chair: Emerald Asuncion

Committee Members: Fiona Webster, Laura Connoy, Desmond Williams, Alice Wagenaar-Tison (Association Québécoise de Douleur Chronique), Andrew Hartman (SaskPain), David Walton (kNOw-Pain), Dalia Al Hussaini

The CCAC supports and advises the Community Consultations Research Assistant in carrying out the community consultations project. Members help identify priority communities, guide the direction and rollout of consultations, and collaborate on new research ideas while ensuring the project remains responsive to community needs.

Knowledge Mobilization and Exchange Committee

Co-Chairs: Jaklyn Andrews, Emerald Asuncion

Committee Members: Fiona Webster, Laura Connoy, Desmond Williams, Rachel Roy (Chronic Pain Network), Megan Groves (Institute for Pain Research and Care), Iulia Tufa (Quebec Pain Research Network), Alice Wagenaar-Tison (Association Québécoise de Douleur Chronique), Merna Seliman (kNOw Pain)

The KME Committee leads the implementation of PEPR’s knowledge mobilization objectives, including fostering shared learning, amplifying diverse voices of PWLECPM, and supporting their engagement in research, policy, and program development. Comprised of students, trainees, partners, and PWLECPM, the committee also advises on engagement practices and evaluates the impact of PEPR’s KM strategies.

Partners

Chronic Pain Network

Institute for Pain Research and Care

Quebec Pain Research Network

L'Association Québécoise de la Douleur Chronique

Global Alliance of Partners for Pain Advocacy

Solutions for Kids in Pain

Western University

McGill University

kNOw PAIN

SaskPain

Co-Investigators and Collaborators

Dr. Norm Buckley

Dr. Hélène Beaudry

Dr. Mehmoona Moosa-Mitha

Dr. Paula Rowland

Dr. Daniel Buchman

Dr. Manon Choinière

Dr. Anaïs Lacasse

Dr. Susana Caxaj

Dr. Marilyn Ford-Gilboe

Dr. Joel Katz

Dr. Craig Dale

Dr. Anna Zajacova

Dr. Andrew Pinto

Dr. Helene Berman

Dr. Antoine Boivin

Dr. Janet Parsons

Dr. Vanessa Ambtman-Smith

Trainees

Hannah Ali

Research Coordinator

Akim Edwards

Research Assistant

Naya Nour-Eddin

Research Assistant

Megan Harley

Research Assistant (2023-2025)

Nathaniel Katz

Research Assistant (2023-2025)

Connect with the PEPR team

Learn more about our research, or get in touch with someone on our team.

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