PEPR's Projects

Our research aims to improve the understanding and inclusion of people with lived experience of chronic pain and marginalization (PWLECPM) in research. Our team will explore how and in what ways engagement can be made more inclusive, safe and equitable through a series of four interrelated projects.

The primary objective of our partnership is to create a Participant Engagement Research Hub (ParE Research Hub) where PWLECPM can be brought into meaningful contact with other PWLECMP, researchers, policymakers, and advocates in order to advance a greater focus on equity, diversity, inclusion and decolonization (EDI-D) in this area.

Our Goals

We aim to meet our six primary goals through a combination of four projects. Each research project is co-led by an established investigator and research trainees and includes at least one person with lived experience.

Enhance the mobilization and utilization of chronic pain research for decision making in health and public policy.

Advance sociological research of chronic pain that critically highlights institutional and social power and oppression.

Facilitate the collaborative engagement of community partners and PWLECPM in all aspects of research on chronic pain, marginalization, and health equity.

Support Canadian academic and non-academic partners conducting research on chronic pain and marginalization.

Create relationships of trust between funders, policymakers, service providers, researchers, and PWLECPM.

Boost Canada’s profile as a leader in participant engagement and chronic pain research.

Research Projects

Explore our ongoing research projects below

Setting the Foundation

Exploring the concept of participant engagement in research using Brokered Dialogue, a film-based qualitative research method designed to study complex or controversial health and social issues.

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The Social Organization of Patient Engagement

Conducting an Institutional Ethnography (IE) of Participatory Engagement (ParE) that begins in the standpoint of PWLECPM and begins to identify the institutional interests underpinning pain research in Canada.

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Situating Meaningful Engagement Within Contexts of Refuge

Exploring how refugee claimants living with chronic pain can be meaningfully engaged and what this means for social and health equity.

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Patient Engagement in Canadian Pharmaceutical and Medical Device Regulation

Exploring patient engagement practices in Canadian agencies involved in pharmaceutical and medical device regulation and pricing.

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