The Social Organization of Patient Engagement
Conducting an Institutional Ethnography (IE) of Participatory Engagement (ParE) that begins in the standpoint of PWLECPM and begins to identify the institutional interests underpinning pain research in Canada.
Opening Up Patient Engagement as a Topic for Inquiry
Patient engagement (PE) in research is intended to be a “meaningful collaboration” with patients as partners in all aspects of research. The purpose of PE is to engage people with lived experience of a health condition to integrate into research projects what they deem valuable. However, no universally accepted framework for including voice, perspective, knowledge, and experience in PE exists. And, while there is growing recognition of the association between pain and systemic and structural marginalization, research in the area of chronic pain continues to pay inadequate attention to how meaningful engagement can be initiated and sustained with people with lived experience.
Team Members
Fiona Webster
Director and Principal Investigator
Fiona Webster
Fiona Webster is a critical sociologist and Associate Professor in the Labatt Family School of Nursing at Western University and holds a cross appointment with the Institute of Health Policy Management and Evaluation, University of Toronto, where she is also an Academic Fellow with the Centre for Critical Qualitative Health Research (CQ). She has successfully led many Tri-Council funded, interdisciplinary research teams with a particular focus on applying sociological approaches to understanding and improving care, with a particular focus on chronic pain and marginalization. By turning a sociological eye to the challenges of providing chronic pain care within parameters currently delineated by the Canadian health care system, her aim is to identify structural and ideological components of contemporary health care that might be amenable to change.
Bio coming soon...
Dr. Eric Mykhalovskiy
Dr. Eric Mykhalovskiy
Eric is a full professor in the Sociology Department at York University. He has been involved in the HIV response for over two decades as an activist, researcher and, in the early years of the epidemic, as a community worker. Eric’s research focuses on the role that various forms of expertise play in governing contemporary health care problems. A recurring focus of his work is the biomedical and broader institutional and discursive response to the HIV epidemic in Canada.
Eric was the recipient of the Dean’s Award for Outstanding Research in the Faculty of Arts, York University, for 2006–2007. In 2014, he received the Dorothy E. Smith Scholar-Activist Award conferred by the Society for the Study of Social Problems. In 2015, he received the inaugural Liberal Arts and Professional Studies Award for Distinction in Social Justice Research from York University. In 2017, he received the CAHR-CANFAR Excellence in Research Award for the Social Sciences.
Eric is a Senior Editor of the Canadian Journal of Public Health and a member of the International Advisory Board of Critical Public Health. From 2011–2015, he served as board member of the HIV & AIDS Legal Clinic (Ontario). He has served as a steering committee member of AIDS ACTION NOW! since 2008 and was a founding member of the Ontario Working Group on Criminal Law and HIV Exposure, an organization in which he continues to play an active role. Over the past 10 years he has published widely on the topic of HIV criminalization in Canada.
Bio coming soon...
Dr. Joel Katz
Dr. Joel Katz
Dr. Joel Katz is a professor of psychology and Tier 1 Canada Research Chair in health psychology at York University in Toronto. He is the research director of the pain research unit in the Department of Anesthesia and pain management at the Toronto General Hospital in addition to serving as a professor in the Department of Anesthesia at the University of Toronto. Dr. Katz received his Ph.D. in clinical psychology from McGill University. He has held fellowship, scholarship, and scientist awards from the Canadian Institutes of Health Research (CIHR) and has been funded as a principal investigator by the U.S. National Institutes of Health and CIHR. He is a former psychologist-in-chief of the University Health Network in Toronto. Dr. Katz is a member of the board of directors of the Canadian Pain Coalition (CPC) and serves as the chair of the CPC Research Committee. He is on the editorial board of the Journal of Pain and Pain Research and Management. Dr. Katz’s has published more than 220 articles and book chapters and has been invited to present his work at professional and scientific meetings in North America, Europe and Asia.
Bio coming soon...
Dr. Andrew Pinto
Dr. Andrew Pinto
Dr. Andrew Pinto is a family physician, director of the Upstream Lab at MAP, and CIHR Applied Public Health Chair in Upstream Prevention in Primary Healthcare.
He is the founder and director of the Upstream Lab at MAP, a space to co-design and rigorously evaluate interventions that tackle the complex social factors that impact our health. Interventions are focused at multiple levels, including individual patients and families, health organizations, neighbourhoods and at the policy process.
Dr. Pinto is a scientist with MAP Centre for Urban Health Solutions in the Li Ka Shing Knowledge Institute, and a St. Michael’s Hospital staff physician. He is an assistant professor in the University of Toronto’s Department of Family and Community Medicine in the Faculty of Medicine, as well as the Dalla Lana School of Public Health and the Institute for Health Policy, Management and Evaluation. He serves as the Associate Director for Clinical Research of the University of Toronto Practice-Based Research Network (UTOPIAN). He was a Commonwealth Scholar, and a winner of an Early Research Award from the Ontario Government as well as a Clinician-Scientist Award from the University of Toronto. In 2019, he was awarded the PSI Graham Farquharson Knowledge Translation Fellowship.
Bio coming soon...
See other Projects
What else we’ve we’ve been working on.
Situating Meaningful Engagement Within Contexts of Refuge
Exploring how refugee claimants living with chronic pain can be meaningfully engaged and what this means for social and health equity.
Setting the Foundation through Community Consultations
Eliciting input from marginalized communities or groups both within health care and broader social settings about approaches to “patient” engagement. We will learn collaboratively and carefully how, when, and where to engage.